Carver is still doing great. However, he is still constipated. I guess if that is all that is wrong with him, we'll take it.
Big brother (Hayden) enjoyed some time with Carver prior to Kinnick's return home. Can you guess what they were playing with?
We are still working on the trip back to Detroit for more ROP surgery. The eye doctor wanted us this Wednesday or the day after Christmas. Neither of these days are good. We can't go Wednesday because Kinnick just came home and there just isn't enough time to coordinate the trip. I don't want to go the day after Christmas because we would have to be there the day before, which is Christmas. Since I missed 4 birthdays with the last visit to Detroit, I really don't want to miss Christmas. However, we are told that we need to go ASAP (within a week if possible) because Kinnick is not expected to stay well long - lungs. So, as soon as the logistics are figured out, we will be off to Detroit. I'm guessing we will go the first part of January. I'm having a difficult time finding someone to help organize the trip. Driving 15+ hours with 2 babies that require oxygen and an oximeter full time along with one requiring g-tube feeds and suctioning doesn't seem to make sense. The oxygen alone would take up 1/2 of the vehicle and doesn't seem safe in the middle of winter. Plus the battery back-ups on the equipment don't last more then 12 hours at a time after being fully charged. I've talked to the commercial airlines (AA) and it doesn't even sound like they can accommodate my babies needs while on flight. In addition, the fact that the airlines are never on time and ground you for bad whether - not allowing you any of your checked baggage, would not work for us. So, I'm trying to figure out what it would take to get a medical transport approved. We have so many doctors, I'm not even sure which doctor is responsible for writing the medical necessity letter, and the doctors don't even seem to know which one should write the letter. So, when I figure all of this out, I will be sure to post and let others know.