Saturday, November 14, 2009
November 14th, 2009
It's been a while since I've posted. We've been so busy with appointments.
Kinnick had her PH Probe study done. They found that she refluxed more then 110 times in a 24 hr period. None of the refluxes contained acid. This just shows that the Prevacid that she is taking is controlling the acid. However, it also shows that the fundo-plication is not working. I have no idea what we do from here. I have an appointment with the GI doctor in December to discuss the findings. I'm pretty sure that they're going to want to re-do the fundo. This is a pretty big stomach surgery, and I am not interested in it, at all. However, something has to be done to get the lung infections under control. The reflux could be the cause of the lung infections. It's possible that the stomach bile is getting into the lungs causing the infections.
Kinnick and Carver both had EUA's to measure the pressure in their eyes. We didn't receive very good results for Kinnick. The pressure has gone up to 37. At this level, damage can be done to the optic nerve. In addition, it will keep her from seeing much of anything. I have no idea how she gets around the way she does. At this point, we know that she really doesn't see much more then lights and shadows. Carver's pressure was at 23. His pressure is also increasing. In addition, he has so much scar tissue in his only good eye that the doctor said that he probably wasn't seeing anything out of this eye. This means more surgery to remove the scar tissue. Sigh...
We received the results from Carver's sleep study. He is still having mild sleep apnea and is still having desats. This is an improvement from the previous study that showed severe obstructive/central sleep apnea. So, the T&A removal did help. However, he was ordered to remain on 1/2 lt of O2 while sleeping. They will repeat the sleep study again next summer.
Kinnick goes in Tuesday for a sono on her kidney's and a VCUG. They are checking for Kidney reflux due to her repeated UTI's. This takes place in the Hospital. Anyone that knows me knows that I hate taking my kids to the Hospital for anything - especially this time of the year.
Kinnick will get her first Synagis shot of the season next week. Carver didn't qualify this year. He hasn't had lung problems this year.
Kinnick and Carver will both get the H1N1 vaccine next week - finally. I've been stressed out over it.
Nurse Jane is now cancer free! She will be coming back this month. We're excited to have her back. We're sad to be losing Nurse Tracy. She has been a huge help and we've really enjoyed having her.