Friday, January 29, 2010
January 29th, 2010
We have been so fortunate to get all of the help, support, and funding that we have received for Kinnick and Carver. Working to get all of the things Kinnick and Carver need can be so overwhelming and exhausting. With that said, some big changes are heading our way. In some ways, I'm excited to see what the next step is and what it has to offer Kinnick and Carver and in other ways, I'm very sad to give up what we've had and know.
Kinnick and Carver will start pre-school on their 3rd birthday. I know it's a great school, but it's a really scary change, and exposure to lots of other kids. They need what school will have to offer. I'm not an expert when it comes to teaching and certainly not an expert when it comes to teaching a blind or blind/deaf child.
Once Kinnick and Carver start school, we'll lose our Rainbows staff. Rainbows has been coming to our home for nearly 2 years. We receive PT, OT, SLP, TOD, VT, and early childhood development. Rainbows has been instrumental in helping us get much needed equipment for Kinnick and Carver. I'm very thankful for all of their help and guidance. I'm one of those parents that never feels like my kids get enough. I'm sure that I'm hard to deal with and don't tell those involved how much I truly appreciate them. The truth is that I really appreciate everything that they do for my children and I'm truly going to miss each and every one of them. It's like they're a part of our family, and I hate to let go of them. Where does the time go?
What else... we are gearing up for our next trip to MI. We will hit the road on February 22nd - Nurse Marci, me, and K&C. Kinnick and Carver have EUA's on February 24th. It's a given that Kinnick will have eye surgery due to the high eye pressure in her right eye. The pressure is at 37 - way too high. I'm hopeful that Carver will not require any surgery. His eye is still pretty irritated for some reason. If it doesn't get better soon, he will have to go in for another EUA here in Wichita. I really don't want to have him sedated again. While in MI, we're hoping to see some of our micro-preemie moms, dads, and kids.
Bob and I are planning some time away in March. We don't get much time together, so we really need this time.