Monday, December 29, 2008

December 29th, 2008

There's not much going on right now.  We're working our way through Carver's program settings on his CI.  He's ready for the last setting before we go in for new settings (mappings).  So far, we haven't seen anything exciting.  The settings are set pretty low, so it's not really expected that we'll see much, yet.  We're just slowly getting him used to sound.   We don't want to overwhelm him or scare him.  The hardest part is keeping the darn magnet on his head.  The bandanna helps.  We've even tried putting pantyhose on his head (like a little gangster hat).  The pantyhose helps even more then the bandanna.  I'll have to post some pics - they're quite funny.  If I put both the pantyhose and bandanna on at the same time, this works even better.  The downfall is that his head gets hot and he gets irritated.  My pilot caps finally shipped today.  I ordered them on the 20th.  The holiday really slowed my order down.  I'm hoping the pilot caps are the answer.

Kinnick is sick AGAIN.  We're still able to manage her at home.  She's refusing to eat or drink anything (thank God for the Mic-key button).  This has gone on for about 2 weeks.  She's been coughing up some nasty green slime and white foam.   She hasn't had a temp and her O2 sats look good, so we didn't take her to the doctor until today.  They couldn't find anything wrong with her except her usual crackles in her lungs (a little more then normal, but not much), a snotty nose, and a sore throat.  They went ahead and treated her for a possible sinus infection and pneumonia.  Hopefully the drug will knock whatever is going on and she'll start eating again.  Anytime she gains a little weight, she gets sick and loses weight.  Grrrrr.

K&C will get their 3rd synagis shots on Wednesday.  I can't believe that we've almost made it to January without being admitted to the hospital.  We attribute this to having such good nurses.  They are all over keeping K&C's lungs clear.  I know I say this all of the time, but we are so fortunate to have such good nurses.  They are fabulous!  We love them and I know Kinnick and Carver love them.  Thanks to everyone who prayed for good nurses.  We never underestimate the power of prayer.  God has really taken care of us.

1 comment:

Anonymous said...

I love reading your posts! You are so right! The power of prayer is amazing! I'm so happy that you haven't been in the hospital with any sicknesses and pray that you will make it through the rest of the season!
My mom and I were just talking about your family today and we are so happy that the kids are making progress and that you all seem to be doing so well! We never forget your family! I'll have to email you a Charlie update and pictures soon. We're doing great!