Saturday, July 18, 2009

July 18th, 2009

One surgery down and 2 to go. We have scheduled the next surgery for 8/19. This one will be in Royal Oak, MI. K&C will both need to have their eyes looked at again. Carver will most likely have the lens removed from his left eye. This is making me nervous since we now know this is his only eye with vision. The concern that I have about removing the lens is that the retina may not be fully attached, yet. He has a sponge behind the left eye pushing on the back of the eye trying to help the retina to re-attach. He has silicone oil in front of the eye pushing from the front of the eye. Once we remove the lens, there is nothing to protect the cornea. The cornea and oil will not play nicely together which could cause many, many more problems which could result in losing the eye completely. So, we need lots of prayers that the retina has fully attached and we can avoid using oil once the lens is removed. The lens needs to be removed because the cataract is completely covering his lens. The cataract makes vision even worse. If the cataract continues to get worse, it will complicate the removal of the lens which could cause add'l eye issues. So, the lens needs to go. I'm hoping that Kinnick's eyes are stable and that no surgery is necessary.

We're going to drive to MI this time. K&C are off O2 during the day, so we won't need as much oxygen. When we fly (med flight) we can't take the stroller or extra oxygen. If they need to put an air pocket in Carver's eye after removing the lens, we wouldn't be able to fly for 5-7 days. In addition, we would probably be sent to our hotel while we waited for the air pocket to go away. This complicates things -- we would need a car, a stroller, O2, etc. So, Nurse Marci has agreed to take the long drive with me. It's 15+ hours straight drive time. We're going to take 2 days to get there and 2 days to get back. We'll drive 3-4 hrs at a time. We're going to try to make it a little vacation and find fun places to stop on the way there and on the way back - providing K&C are happy after surgery. We're also going to try to meet up with some of our Micro-Preemie mom friends that I've met through my support groups or while in MI.


Julia said...

I haven't checked your blog in awhile, so I need to do some catch-up reading, but I just wanted to say good luck with the upcoming trip and surgery, and Kinnick's smile during The Fishy Song is *adorable*! Best wishes....

Anonymous said...

We'll be praying that everything with the trip goes well. Nurse Marci must be awesome! Hope you are able to enjoy some of the trip with the kiddos!